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Blogging for ME/CFS Awareness 2008 – Blog Archive
Posted by rachelcreative on May 12, 2008
For 2009 onwards please visit ME Aware blog – a central resource for individuals blogging and online activities for ME Awareness http://meaware.wordpress.com
Below is an archive list of the blog posts for Blogging for ME/CFS Awareness 2008.
12 May 2008 is International ME/CFS Awareness Day and we are bloggers who are trying to do our bit to raise awareness. Different names united in raising awareness - CFS, ME, CFIDS, MCS, PVFS. It’s also Fibromylagia (FMS) Awareness Day.
If you have written a blog post for ME/CFS Awareness and want to be added to our archive list please leave a comment pointing me in the right direction.
Bloggers for ME/CFS Awareness
- ashysheela
- behind the surface
- cinderkeys
- cusp
- Donimo
- Elizabeth McClung
- GreenWords
- JoWynn
- Life As We Know It
- lilwatchergirl
- NMJ
- Maggie
- Maija Haavisto
- Mick: From the Tram
- Paul Groves
- RachelCreative
- RachelM
- reading the signs
- Sandy/Fighting Fatigue
- seahorse
- Zarii
BLOG POSTS FOR ME/CFS AWARENESS 2008
Ashysheela – International ME/CFS Awareness Day
Behind The Surface – Yet another ME/CFS Awareness Day post
Cinderkeys – A Song for CFIDS – Everybody Knows About Me
Cusp – Must Try Harder
Donimo – Fibromyalgia Awareness Day
Elizabeth McClung – Blogging for CFS/ME: Honor those to whom honor is due
GreenWords – Awareness Sqeak
JoWynn – ME-CFS Awareness Day
Life As We Know It – Happy Awareness Day
NMJ – The State Of Me Publication Date
Maggie – International ME/CFS Awareness Day 2008
Maija Haavisto – CFS/ME awareness day 2008
Mick: From the Tram – ME/CFS International Awareness Day
Paul Groves – Controversial, ME? Whatever could you mean?
RachelCreative – What is ME/CFS?
RachelM – ME/CFS Awareness Day and see her photo posting Long Driveway
Reading The Signs – Coming of Age
Sandy/Fighting Fatigue – Today is CFS & Fibromyalgia Awareness Day
Seahorse – These Days
Zarii – Chronically Fatigued Blogging for M.E. Day ~ 12th May 2008
28 Responses to “Blogging for ME/CFS Awareness 2008 – Blog Archive”
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What is ME/CFS? « RachelCreative said
[...] Blogging for ME/CFS Awareness 2008 – Blog Archive [...]
Maija Haavisto said
I hope this counts: http://diamondie.deviantart.com/journal/18283751/
(There is some other stuff in there, because I only submit a few journal entries a year on DA.)
rachelcreative said
Maija – Of course it counts
) Thanks for the link. I shall be stopping by in a while to read your post.
cusp said
Hi Rachel. Just posted up new piece for M.E. Awareness Day.
http://lombredemonombre.blogspot.com/2008/05/must-try-harder_12.html
Some great posts so far
)
rachelcreative said
Hi Cusp – It’s a great post too – I just read it before I saw your comment
)
Thanks for the link.
Everyone has done a great job today
)
Elizabeth McClung said
Well, it is still May 12th when I posted, sorry I am so late, but well, at least I made it. My post is here:
http://elizabethmcclung.blogspot.com/2008/05/blogging-for-cfsme-honor-those-to-whom.html
Elizabeth McClung said
Sorry if this a double, I just wanted you to know I posted and did do it on the 12th of may (albiet a bit late in the day – best intentions and all).
http://elizabethmcclung.blogspot.com/2008/05/blogging-for-cfsme-honor-those-to-whom.html
Elizabeth McClung said
I keep trying to comment here and keep getting kicked out – so if this is in triplicate, I am not an idiot, only a idiot when it comes to computers, RachelCreative, please come and add the link, I fear to add it again, but I did blog, as promised, on the 12 (in my time zone).
rachelcreative said
Elizabeth – thanks for perservering ;o) I have an incredibly s-l-o-w laptop this last two weeks so I can sympathise. Thanks for the post. I shall come read it properly in a bit.
Rachel M said
Congratulations on such a great job, Rachel!
Whenever I see your awareness ribbon on the net and looking at more and more awareness blogs were added to this page, I couldn’t push the overwhelming emotion of proud.
I know this project required great efforts, organisation and consequences for a person with ME/CFS.
THANK YOU VERY MUCH!
Best Of The Rest Special- All About ME « Remembering the Ability in Disability said
[...] Best Of The Rest Special- All About ME Yesterday was Blogging For CFS/ME awareness day. I don’t know enough about this DisAbility to do very much, but I did decide to devote today’s roundup to it. I came across a roundup of posts written yesterday to mark the day, so I decided just to borrow it! A very special thanks to RachelCreative! [...]
Michelle said
Thanks for hosting a round up for our special sort of day.
I’m a little late with mine (I was just too sick yesterday…er, the day before on your side of the Pond) but I’ve got a post at http://behindthesurface.blogspot.com/2008/05/yet-another-mecfs-awareness-day-post.html.
cinderkeys said
Commenting here after commenting to a related April entry that I backread. Apologies for the redundancy.
I posted for CFIDS/ME Awareness Day here: cinderbridge.blogspot.com. It wasn’t nearly as comprehensive as yours. My hope was to get across, if nothing else, that it’s not just tiredness.
Thanks for doing this!
jowynn said
Rachel, I blogged about ME-CFS on Awareness Day and Rachel Makepeace suggested I mention it to you. http://jowynn.wordpress.com/2008/05/12/me-cfs-awareness-day/
I read your blog regularly.
Rachel M said
I just found this YouTube video for ME/CFS Awareness, and felt it is appropriate to show you here.
Donimo said
Wow, I have some reading to do! What a great collection. I’d like to add my post about Fibromyalgia:
http://mybodyofwork.blogspot.com/2008/05/fribromyalgia-awareness-day.html
[I hope that works as a link.]
Brian said
I posted over years ago about having CFS. I call it having ‘Forever Flu’.
http://hummingbunny.wordpress.com/2006/05/31/i-have-forever-flu/
rachelcreative said
Rachel – Thanks and thanks for the youtube link.
Cinderkeys – Thanks and I’ve added your blog post and song to the list.
JoWynn – Thanks for the link. I’ve added your post to the list too
)
Donimo – Thanks for your fibromyalgia awareness post link. I’ve added it to the list. I’m glad to have fibromyalgia respresented here as we share the same awareness day and our conditions have a lot in common (some researchers beleive they are closely related).
Brian – Thanks for the link. It is certainly a post which speaks clearly about your battle with CFS.
I haven’t added the post to this list as it is a list for posts for awareness for this years awareness day (2008). If you wanted to write something – even if it’s a little later than the actual day (12th May) – I’d be happy to add it to the list.
So glad to hear you have recovered somewhat even if you are not 100% pre CFS levels.
Thanks for taking the time to leave a comment.
Michelle said
I think I posted my link on the wrong post. But in response to your question, Rachel, it’d be great if you could add my post to your list.
http://behindthesurface.blogspot.com/2008/05/yet-another-mecfs-awareness-day-post.html
stevendraper said
My goodness, that slipped my by. You could kind of add Hypersomnia to the list. It is different, but similar in symptoms and devastation. It’s just cost me my 6 figure career, robs motivation, and the ability to be awake.
rachelcreative said
Hi Steven. I just did a quick search on Hypersomnia as I know nothing about it. (This information sheet from the National Institute of Neurological Disorders)
What a devasting condition. It must be incredibly difficult to live with. I, for one, am now a little bit more aware!
You are a talented photographer by the way
)
stevendraper said
Thanks for adding the link to your reply. Quiet simply that is about all the information there really is. I have read some reports that mention the condition but nothing in great detail. Even the consultant explained that no-one really understands it at the moment. I hate the thought of drugs, but the modafinil does seem to help out, thankfully!
Thank you for your kind comments about my photography – having a focus (pardon the pun) has been a major help.
seahorse said
Hi. I didn’t forget but I wasn’t well enough on the day. Then I really did forget and now I’m very annoyed. I’m in that place where other people say it so much better than I do. Thanks for putting this together, it means a lot.
seahorse said
After reading some very good posts I have put together a small offering here:
http://beautyoffensive.blogspot.com/2008/05/these-days.html
rachelcreative said
Seahorse – Thanks for the link to your ME/CFS awareness post. I’ve added it to the list
)
greenwords said
Belatedly adding name to list.
rachelcreative said
Greenwords – Thanks so much! I’ve now added your post to our list.
muddipuppy said
Hi Rachel,
For my Christmas present to myself as well as to the community, I’ve just begun my CFS blog. Post me up, please!
cfsawareness.wordpress.com
happy holidays and health,
amberlin