I rely on my Disability Living Allowance (DLA) for many things to help with my personal care, mobility and medical needs.
The British Government is seeking to stop paying this sort of allowance directly to people and to give funding to local authorities instead. But the services that funding would provide would not include many of the things I rely on my DLA to pay for. Effectively I would have my support cut off.
Read The ME Association’s concerned response to the Green Paper ‘Shaping the Future of Care’ http://www.meassociation.org.uk/content/view/1020/161/
A couple of extracts from that response:
“Attendance Allowance (AA) and Disability Living Allowance (DLA) use care needs (and in the case of DLA, mobility needs) as indicators of the extent of someone’s disability. Those benefits were created to help with all costs of disability including lost earnings and higher fuel bills, leisure and housing costs. Many of those on AA/DLA do not make use of fee paying care services and so switching resources away from AA/DLA and into professional care would mean that many beneficiaries of those benefits could lose out.”
“Research shows that much of AA/DLA is spent on a broad range of informal care services such as paying for gardening, sharing lifts in cars and paying for someone to do shopping. These informal arrangements work well and bring with them a social network; friends are made and health is enhanced. This all supports the core principle of Individual Budgets that the care and benefit system has recently championed.”
Please sign the petition http://petitions.number10.gov.uk/AttendanceA/
Here are just some of the things things I rely on my DLA to pay for:
- prescription medication (a yearly certificate)
- over the counter medication
- suppliments (eg. fibre suppliments, vitamins and energy suppliments) which help with symptoms
- help with gardening as I am unable to do any myself
- upkeep/maintenance of my wheelchair which I rely on when I have to go anywhere when I need to stand or walk for longer than a few minutes
- help with fuel bills as I am virtually housebound, being sedentary and having trouble with temperature regulation due to ME
- thermal clothing to help keep me warm as my mobility problems mean I am sat still for long periods and also for when I do go out in my wheelchair (assisted) during autumn and winter
- help with broadband which allows me to stay in touch with family and friends which would otherwise be impossible due to my mobility problems and difficulties with communication due to ME
- earplugs for noise sensitivity
- eye glasses which I require because ME affects my ability to focus when I am very ill
- help with delivery for shopping as I am unable to go out to the shops and so rely on using online shopping and paying for postal delivery
Without DLA that I get paid there would be greater strain placed on us and our limited income because of additional needs due to my illness. The same is true for millions of other people.
A huge thanks to Benefits and Work and their continuing efforts to rally support in opposing this Green Paper. Without them many people would be unaware of the implications of these proposals and many groups would not be so actively engaging in the debate.